Posts Tagged ‘young adults’

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Gold at the End of the Rainbow

May 23, 2012

Wow!  How could I let a whole year go by without updating this blog?  Well, one of the reasons was that I didn’t correctly post the update I did write in the Fall of 2011.  Yikes!  After 7 years of learning to make use of the latest computer technology, I am still stumbling.  Oh, well! Not to worry.

The important news is that I had a terrific year from March 2011 to May 2012, in terms of meeting my goal of fulfilling my daughter Sara’s dream to “make a difference” in the world of young adult cancer advocacy.  All the events mentioned in the last blog – APOS, CAPO, and the “Wrong Way To Hope” cross-Canada Tour – were a huge success. I got to reconnect with old friends and make some new ones!  It is especially gratifying to meet new young adult survivors and their caregivers.  To these people, our advocacy awareness campaign matters.  That makes the traveling worthwhile.

After the successful completion of the WW2H Tour, I arranged to fly down to San Diego, California to present my One Stop Shop: Multimedia Resources for Young Adults With Cancer Poster at the National Coalition of Oncology Nurse Navigators Conference. The theme was “Changing the Face of Cancer Care”. NCONN president and co-founder Sharon Francz and her amazing assistants kept the whole conference going in spite of a 12 hour blackout!  As we found our way up and down the stairs (no elevators available!) by the light of candles and glowsticks, I “hugged” up with my old pal,  Jonny Imerman (Imerman’s Angels) and met some new members of the young adult cancer community: Ariana Vargas from www.GiveForward.com; Matt Ferstler, testicular survivor and Founder of Single Jingles; Diptesh Patel, Chief Executive of ZarpZ; and Amanda Hitt, who was representing mASSkickers.  Great fun!  I love the energy of all these incredibly talented young adults who are so passionate about speaking up on behalf of all young adults with cancer.

November found me in Austin, Texas at the LiveStrong Young Adult Alliance Conference, presenting the One Stop Shop: Multimedia Resources poster again (for which I was thrilled to win the LSYAA Poster Award), and also co-presenting a session with Mike Lang on The Emergence of Adolescent and Young Adult With Cancer in Film – Past, Present and Future, to over 300 young adult survivors and organizations at a Plenary Breakfast Session. Mike introduced his new film: Ebb and Flow, and I was able to feature clips from both Chasing Rainbows (with new Spanish subtitles!) and Sara’s Story, Sara’s original documentary from 1998. This turned into an opportunity to close a chapter on the work I have been doing on behalf of Sara for the past 12 years, acknowledging the passing of the torch to the many new filmmakers advocating for young adults with cancer: Mike Lang, our special guest Andrew Jenks from MTV’s “The World of Jenks” and many others.

Recently I was also grateful and honoured to receive an Outstanding Leadership Award from the Global Women’s Summit, for my work on Sara’s behalf. It does feel like something is coming to an end; closure finally achieved, perhaps.

The bottom line: when Sara and I started advocating/facilitating for young adults with cancer 14 years ago, the voices from this community were only whispers. Now, they are at a ROAR.  Sara’s work is done!  And thus, my work as a young adult cancer advocate is transforming.  I think it is time for me to shift my focus, towards the parents of young adults who live and (sometimes) die from cancer. This is another “gap” in the general awareness of the young adult cancer experience that needs to be filled…what is a parent to do?

I wrote my own very personal answer to that question for the Cancer Knowledge Network blog: “To Live or Die or Advocate, A Mother’s Choice”.  You can read it here: http://multimed.current-oncology.com/patients/to-live-or-die-or-advocate-a-mothers-choice/. You can also find another part of that story in Anne Grinyer’s latest book: Palliative and end of life care for children and young people: home, hospice and hospital, in which she has quoted an interview I did with her about the end of Sara’s life when I attended the Teenage Cancer Trust Conference in London, England two years ago.

My need to explore this new direction was reinforced when I attended the OMG Summit in Las Vegas in April 2012.  Matthew Zachary hosted a session panel including four parents of young adults living with cancer. During the proceedings, a young survivor stood up and expressed a huge concern for her mother, if she was to actually die from her cancer.  From the audience I spoke up, sharing Sara’s story with everyone in an effort to show this young woman that even though Sara died, I was still standing 12 years later. I also mentioned that I had recently spoken to Janie Brown of the Callanish Society about holding a one-day retreat in September 2012 for parents who are facing this kind of loss.  After the OMG session many of the parents who were in attendance came up to me to say they would love to have the support of such a retreat.

Again, at CAPO (Canadian Association of Psychosocial Oncologist)’s annual conference in April 2012, when Mike Lang, researcher Liane Kandler and I presented a 90 minute workshop called Reel Stories, Real Wisdom: The Use of Film as a Tool, Treatment, Recovery and Education for Young Adults With Cancer, the need for support for the parents of young adults with cancer came up.  It seems to me that this next step  is really calling me by name, and I need to pay attention to the calling and see where it takes me.

So, you see, there is a pot of gold at the end of the rainbow.  I need to explore this new found treasure further.  I know Sara would think that it would make for a successful transformation.  It also allows me to stay connected and supportive to the young adult cancer community…which I love so much!

I will keep you posted.

– Pat

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Chasing Rainbows and Wrong Way To Hope National Tour 2011

March 8, 2011

Biggest New News!  Young adult cancer survivor, Mike Lang, asked me to help him “do for his film, “Wrong Way To Hope” what I have been doing for “Chasing Rainbows” for the past 4 years.   Within the past few months we have built a WW2H Screening and Discussion Cross Canada Tour for March 20 to May 19th, 2011, from Victoria, B.C. to Halifax, N.S.     We are launching the tour with YACN and Callanish Society who are hosting a WW2H Screening event as a fundraiser at the Ridge Theatre in Vancouver, B.C. on March 20.   Sponsors are being finalized as I write this:  YACC and First Descents have shown interest.  Mike Lang is keen to empower the voice of young adult cancer survivors everywhere.  A blend of Canadian and USA Retreat programs would be huge!  Go Mikey Go!   Fraserway RV has offered an RV for Mike and his wife and business partner, Bonnie to drive across the nation.  Check in at: www.wrongwaytohope.com to find out when we will be coming to your town or city!

I am excited about broadening my young adult cancer awareness campaign in the months to come.   With the help of www.owlydesign watch for my new branding campaign:  Chasing Rainbows Young Adult Cancer Advocacy.

I  have developed a “One Stop Shop: Mulitmedia Support Resources for Young Adults Living With Cancer” presentation which I presented at APOS (American Psychosocial  Oncology Society) Conference in Anaheim, California in Feb 2011.  It has been accepted by CAPO, Canadian Association of Psychosocial Oncologists,  for their Conference in May 2011.  Plus, Mike Lang and I will be presenting a screening of “Wrong Way To Hope” at CAPO as well.   Yahoooo!

Since my last  summer blog post:   I traveled down to Austin Texas in November 2010 for the Livestrong Young Adult Alliance Conference to present “Chasing Rainbows-Young Adults Living With Cancer” in Spanish subtitles!  Great response from the Latino community!  Well worth the effort and expense.   I also took one of  www.jimmyteens.tv Flip cams to interview some of the young adult cancer survivors attending the conference.  I met lots of new folks:  Jeanette Ferguson from Joan’s Fund, (Head and Neck Oncology Research), Peter Laneas, spokesperson for The Canadian Testicular Cancer Association, Jeni Garner from www.Lovehopestrength.com and Debra Macki from www.YellowUmbrella.org .  Ethon Zohn was a keynote speaker…got a pic with him!  He is a terrific speaker with a big heart!

Of course I hooked up and partied with old pals like Jonny Imerman from Imerman’s angels, Lorna Larsen from Team Shan, Matthew Zachary from I[2]y and Eric Galvez from MASS Kickers…plus many more familiar faces, far too many to mention.  Livestrong YAA is such a great way to meet all the young adults working together to strengthen the voice for the young adult survivor.  I feel honoured to be part of this circle of energy!

Sara..you continue to be my inspiration.  You, like Geoff Eaton at YACC and Matthew Zachary at i[2]y, are one of the pioneers for the young adult cancer awareness voice that has definitely grown in size and magnitude since you were first diagnosed with cancer in Oct 1997.  All three of you should be so proud!  You wanted to make a difference and you have!  Love you…miss you!  Mom.

To be continued….

Love, Pat, the Mom.

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Photo Post: Teenage Cancer Trust conference in London, UK (summer 2010)

September 19, 2010
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Photo Post: Quebec City, summer 2010

September 19, 2010
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Chasing Rainbows, Contests and Travel

April 30, 2010

Wow!  Today, on Sara’s behalf , I entered  the Jon Bon Jovi/ET Canada “Circle of Change” contest being held by Global TV.   Before she died Sara asked me to make sure that  her film resource, “Chasing Rainbows-Young Adults Living With Cancer, was distributed “throughout B.C., across Canada, the USA and “Mom” if you have time, Europe.”   If I ever feel sad or wonder as to what I am to do next, Sara sends me a rainbow or a message to let me know that she is still with on this journey with me.  So it didn’t surprise me  that I was watching ET Canada and saw  the Jon Bon Jovi  “Circle of Change” contest.  Bon Jovi was Sara’s favourite band in the 80s. And, they were asking people, “what are you doing to make change in the world? ” Good grief!  Sara knew that  I would know that she would expect me to enter the contest.  So I did.   The $10,000 prize money goes to your favourite charity. I know Sara would want the money to promote young adult cancer awareness programs around the world.   And, under her guidance and direction, I am continue to work to make her dream come true.

As of April 2010, I have either screened or distributed the film in B.C., Canada, and the USA.  Chasing Rainbows” is now translated into French and it is having its French World Premiere Screening in Quebec City at the IPOS/CAPO Conference on May 27th.

This Spring I have been asked to attend the Teenage Cancer Trust and Young Adult Cancer Conference in London, England…so Europe here we come.

Today I received an email from a woman from India, who I met at the Control Cancer, Go Public Conference in Ottawa last year,  who is in the process of translating “Chasing Rainbows” into the Marathi and Hindi languages.

April 9 and 17th, we held two House Concerts, with solo gutarist, Ed Henderson, for National Young Adult Cancer Awareness Week…one in Vancouver and one in Whistler, B.C.  I handed out “Cancer Sucks” stickers and i[2]y Stupid Cancer.com bracelets.  (Photos to come).

I have been asked to attend “Fostering Cancer Survivorship Research in Canada: Building Capacity through a Research Consortium” workshop at UBC next week.  They wanted a young adult cancer advocate and a caregiver perspective represented at this meeting.  I will be there.

These are all exciting opportunities to advocate for young adult cancer awareness.  And, until Sara tells me differently, I will continue to “change the world” on her behalf.

More to come…

Still, Chasing Rainbows,

Pat

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Photo Post: Sara Goes To Hollywood

September 29, 2009
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Hollywood or Bust!

July 30, 2009

“Chasing Rainbows” is off to Hollywood to be screened on August 6 at the West Hollywood International Film Festival in L.A. at the Regency Theatre at 4:55 PM.  www.whiff2008.com  Wow!  Sara gets to go to Hollywood!  She must be smiling over this one.  I am excited to be making our American Film debut in Hollywood.  Not only am I able to meet one more of Sara’s goal for her film, but I can do it in the city where the “stars come out to play!”  Maybe some of them will turn up to see the f ilm.

Other news:  I will be attending the “Go Public-Global Leadership Forum to Control Cancer” in Ottawa  from Sept 23 to 27th.   Then I will be moving on to Hamilton, Ontario to Wellwood and the Jurainski Cancer Centre for two Film Screenings and Presentations on Sept 29/09.   In November 12/13 I plan to attend the LiveStrong Young Adult Alliance conference in Austin, Texas!   All three of these events will allow me to interact with lots of young adult cancer survivors and I always enjoy that aspect of these tours.  SO I am Still, Chasing Rainbows…wherever Sara takes me.

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Uploading Young Adults’ Candid Cancer Conversations on YouTube

March 20, 2009

Sooooooo excited.  After attending the social media panel discussions on March 4 at the Women In Film Festival, I was pleased to have confirmed that if you have a YouTube video dream,  “take the risk,  work it, define it , then get it posted ASAP and once you are up and running, redesign it if necessary!”  YouTube, Twitter, web media sites are where little business and big business is happening.  This is the new media frontier.  So I am happy that Michael and I, designed it, shot it, edited it, added music to it and then took the risk to upload to YouTube our new Young Adults’ Candid Cancer Conversations – Parts One to Five).  We are all about facilitating the much needed support for the VOICE of young adult’s touched by cancer.  Hope this series helps service that goal.  Many thanks to our spokespeople so far: Peter M., Grace W., Andrea P. and our Sibling spokesperson, Graham M.    More to come.

Keep chasing those rainbows!

Pat

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March09 – A fantastic Rainbow Month

March 9, 2009

Wow!  What a fantastic month March 09 has been for Chasing Rainbows. Monday, March 2, I was interviewed on live webradio by Matthew Zachery (of I’mTooYoungForThis.org) for “The Stupid Cancer Show” broadcasting out of New York.  Got some great feedback and some new website links supporting young adults living with cancer.  I will get Melanie to  post them on our “Chasing Rainbows” website. [Ed. note: they are also on the blogroll to your right…scroll down to see lots of useful links!]

Next:  Our March 5th “Chasing Rainbows Screening and Discussion” presentation at the Dunbar Community Centre here in Vancouver had a full house.  We kept having to add more chairs as people streamed into the room.

Anna Peled, our young adult cancer survivor speaker, kept us laughing with her jaunty delivery while Sarah Sample, a counselor from the BCCA, informed us of the ongoing support counselling services available for patients and family members offered at the BCCA.  Michael Booth Palmer charmed the audience with his usual evocative balladeer style.

The big surprise to me and to the crowd was Angelo Vakakis, a young man from the film, who showed up unexpectedly and gave us a quick update on what he has been doing since shooting the original Chasing Rainbows film footage in April 1998.  He looked good and is walking strong and unaided…just as he hoped he would be someday, after his leg was amputated below the knee due to cancer more than eleven years ago.  Soooo great to hook up with him again.

March 9 I received an email from Lorna Larsen of Team Shan saying she was coming out to participate in the Canadian Association of PsychoOncology (CAPO)’s annual conference here in Vancouver and we plan to hook  up and share our future goals to support young adults living with cancer.   Check out www.TeamShan.ca for more info on the marvelous work Lorna is doing on behalf of young women with breast cancer.

March 5th Michael Boot Palmer and I launched Parts 1 to 5 of the new YouTube videos interview series we have titled: “Young Adults’ Candid Cancer Conversations”.  Check it out and let us know what you think!

So it has been a month of getting things done…reaching out…and helping support.  More to come…stay tuned!

— Pat Taylor

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Upcoming: Chasing Rainbows on RADIO and on SCREEN

February 17, 2009

CHASING RAINBOWS ON THE RADIO
March 2, 2009

9:00 – 10:00 pm Eastern Standard Time (6:00 pm in BC)

Chasing Rainbows’ producer/director Pat Taylor will be interviewed on “The Stupid Cancer Show”, a live, interactive social webcast giving voice to more than 1 million young adults affected by cancer. The show is hosted by Matthew Zachary, founder of the I’m Too Young For This! Cancer Foundation. You can listen to “The Stupid Cancer Show” live online here.

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FILM SCREENING & DISCUSSION
Chasing Rainbows: Young Adults Living With Cancer

Dunbar Community Centre (4747 Dunbar St. at W. 31st)
March 5 2009, 7:00 – 8:30 pm
Free Admission: all welcome! (Call 604-222-6060 to register)

Producer/director Pat Taylor hosts a screening of Chasing Rainbows: Young Adults Living With Cancer at the Dunbar Community Centre. The event includes a post-film discussion/Q&A with young adult cancer survivors Anna Peled and Vikram Bubber and BC Cancer Agency family counselor Sarah Sample, and live music by singer-songwriter (and Chasing Rainbows co-producer) Michael Booth Palmer.

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